Saturday, August 25, 2012

How to contact me...

Well I'm not very blogeriffic. I am very excited my blog shows up on a google search, which is what I wish happened when I first googled the duplication. I posted one picture and that was a complete accident!! I have no idea how to allow people to follow my blog or to email me. My email is 1q21.1microduplication@gmail.com

Genetics and preschool!

I have been waiting months for K's genetics appointment. At first I couldn't wait to go because I wanted the doctor to explain what was wrong with my kid! I now, after lots of research, can't wait for the appointment just to hear his take on it. I an in no way allowing any more tests, and I now think I'm confident enough with everything I've learned to call bull crap. I am so looking forward to seeing of this doctor thinks the same thing, or of he's going to try to run mote tests like K is a lab rat!? K starts preschool the same day. I can't believe I'm choosing to have him late on his first day to listen to someone explaining something that I think is a reDICKulous diagnoses. Did I mention that K now knows the alphabet in correct French too?! So he now knows it in English, Spanish, French and some Chinese!! Yea, this duplication is horrible I tell you, just horrible!!! ;p

Thursday, August 2, 2012

The results

The results are in...................NORMAL!! Everything is normal. He does have a tiny arachnoid cyst behing his left eye, but it is nothing to worry about, and is actually common! I cant and havent wiped the smile off my face!!!!

MRI

So July 31st I am proclaiming as one of the worst days of my life!!! I wake up crackhead early, to get ready for check-in for K's MRI. He was a trooper!! I wake him up at 5:45, and the look he gave me was a "seriously, you f@&king a$$, I am not getting out of this bed. He started to suck his thumb ( which he STILL does... Both my kids do), as he reaches for my elbow.( that's how he had always gotten to sleep, sucking his thumb and rubbing ANYBODY'S elbow. I remember when we went to get the kids pictures taken at the picture people. We were there forever!!! So as we are looking through the photos on the screen with the girl that works there, he started rubbing her elbow!!! So, he doesn't care who's, he doesn't discriminate. White, black, Asian, Hispanic... As long as you have an elbow, he's content!!! So he stretches, and says "mama, good morning, good morning, good morning to youuuuuuu"!!! ( I try to sing that every morning, and now he sings it too!!!). So thank god he's not a big eater, because he wasn't allowed to eat or drink anything until after the test. He didn't ask for anything, so that wasn't a problem at all. ( now my daughter would of been a totally different story. That girl can eat! My almost 2 year old honestly eats more then I do!) So we arrive at 6:20, and check in. The nurses up at children's hospital are awesome! They are so nice,so reassuring, just awesome people. So we have an older nurse who I tell that I've never been this nervous in MY LIFE! she goes over everything with me. She answers all my questions and she makes it seem like she will do everything to watch him and make sure he's ok. She actually promised me she would take care of him and that he will be returned to me in one piece!!! Ahhh, that made me feel better. So she says anesthesia would be in shortly to talk to me and answer any other questions. Well, here he comes. A man, probably my age or a bit older ( I'm 33!!) tall, skinny and insane. The way to describe him is he drank 5 pots of coffee and ran into our room. He talked super fast, and basically had me sign a release form. He then goes and grabs K's hand. The nurse said "wait, we will take his shoes off", and he said " there's no tine, we will do it there". I was in shock. I must of given the nurse a 'this is not how you said it would happen' look, because she said ( mind you my son is screaming his head off because this guy has his hand) "Mom is going to walk him down and stay with him until he's asleep". He let go and K ran to me. I picked him up and we walked down the hall. The rest was so fast. He got taken from me and put on a gurney.Then out of nowhere a woman pops up and immediately has a mask to his face. K is flipping out. The nurse said" here mom, go on the side of the bed and comfort him", and crazy coffee anesthesia guy says, "no, stay there, he's out, he's out". I see K's eyes roll back and he's asleep! WTF, it took a total of 1 minute. The nurse then gives me his shoes and tells me to follow her. I actually bumped into something because I was in a daze. I couldn't believe how fast it went. Now I was to wait... About an hour and a half later a nurse calls me back to recovery. They inform me He did great and he would be sleeping for about a hour. Yea, 5 minutes later he wakes up screaming. He screamed the entire time, but he drank, ate two bags of cookies and we were allowed to leave!!! Never again!!!!!! :)